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Introduction:

The role of social workers in supporting individuals with Cri-du-chat syndrome and their families is a critical aspect of ensuring that those affected by this rare genetic disorder receive the necessary care and support to lead fulfilling lives. Cri-du-chat syndrome, also known as 5p- syndrome, is a genetic disorder caused by a deletion of a portion of chromosome 5. Individuals with Cri-du-chat syndrome often face a range of physical, cognitive, and developmental challenges that require specialized support and services.

Background of study:

This chapter will provide an overview of Cri-du-chat syndrome, including its causes, symptoms, and impact on individuals and their families. It will also explore the current state of research on the syndrome and the role of social workers in supporting affected individuals and families.

Problem Statement:

Despite the significant impact of Cri-du-chat syndrome on individuals and their families, there is a lack of research on the specific role of social workers in providing support to this population. This study aims to address this gap by exploring the ways in which social workers can support individuals with Cri-du-chat syndrome and their families.

Objective of study:

The objective of this study is to examine the role of social workers in supporting individuals with Cri-du-chat syndrome and their families. Specifically, the study will explore the challenges faced by individuals with Cri-du-chat syndrome and their families, the support services available to them, and the ways in which social workers can enhance the quality of life for this population.

Limitation of study:

This study may be limited by the availability of research on Cri-du-chat syndrome and the experiences of individuals and families affected by the disorder. Additionally, the scope of the study may be limited by the time and resources available for data collection and analysis.

Scope of study:

This study will focus on the role of social workers in supporting individuals with Cri-du-chat syndrome and their families in a specific geographic area. The study will include interviews with social workers, individuals with Cri-du-chat syndrome, and their family members to gather insights into the challenges and support needs of this population.

Significance of study:

This study will contribute to the growing body of research on Cri-du-chat syndrome and the role of social workers in supporting affected individuals and families. The findings of the study may inform the development of more effective support services and interventions for individuals with Cri-du-chat syndrome.

Structure of the Thesis:

This thesis will be divided into five chapters, with each chapter focusing on a specific aspect of the study. Chapter one will provide an introduction to the study, chapter two will review the existing literature on Cri-du-chat syndrome and social work practice, chapter three will outline the research methodology, chapter four will present the findings of the study, and chapter five will offer a conclusion and summary of the project.

Definition of terms:

This chapter will define key terms related to Cri-du-chat syndrome and social work practice, including terms such as genetic disorder, social worker, support services, and quality of life.

Thesis Overview:

The role of social workers in supporting individuals with Cri-du-chat syndrome and their families is a crucial aspect of ensuring that this population receives the necessary care and support to lead fulfilling lives. This thesis will explore the challenges faced by individuals with Cri-du-chat syndrome and their families, the support services available to them, and the ways in which social workers can enhance the quality of life for this population. Through a combination of literature review, research methodology, and data analysis, this study aims to provide valuable insights into the role of social workers in supporting individuals with Cri-du-chat syndrome and their families. This thesis will contribute to the existing body of research on Cri-du-chat syndrome and social work practice, and may inform the development of more effective support services and interventions for individuals with Cri-du-chat syndrome.

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