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Introduction

Duchenne muscular dystrophy is a genetic disorder characterized by progressive muscle degeneration and weakness, affecting primarily boys and leading to significant disability and premature death. Nurses play a crucial role in caring for patients with Duchenne muscular dystrophy, providing physical, emotional, and psychological support to both the patients and their families. However, there is limited research exploring the experiences of nurses caring for patients with this condition. This thesis aims to address this gap by investigating the experiences of nurses providing care to patients with Duchenne muscular dystrophy.

Table of Contents

Chapter 1: Introduction
1.1 Introduction
1.2 Background of the Study
1.3 Problem Statement
1.4 Objective of the Study
1.5 Limitation of the Study
1.6 Scope of the Study
1.7 Significance of the Study
1.8 Structure of the Thesis
1.9 Definition of Terms

Chapter 2: Literature Review
2.1 Overview of Duchenne Muscular Dystrophy
2.2 Nursing Care for Patients with Duchenne Muscular Dystrophy
2.3 Experiences of Nurses in Providing Care to Patients with Duchenne Muscular Dystrophy
2.4 Challenges Faced by Nurses in Caring for Patients with Duchenne Muscular Dystrophy
2.5 Support Systems for Nurses Caring for Patients with Duchenne Muscular Dystrophy
2.6 Best Practices in Nursing Care for Duchenne Muscular Dystrophy Patients
2.7 Ethical Considerations in Nursing Care for Duchenne Muscular Dystrophy Patients
2.8 Cultural Competency in Nursing Care for Duchenne Muscular Dystrophy Patients
2.9 Future Directions for Research in Nursing Care for Duchenne Muscular Dystrophy Patients

Chapter 3: Research Methodology
3.1 Research Design
3.2 Participants
3.3 Data Collection Methods
3.4 Data Analysis Techniques
3.5 Ethical Considerations
3.6 Research Limitations
3.7 Trustworthiness of the Study
3.8 Potential Biases
3.9 Research Timeline

Chapter 4: Discussion of Findings
4.1 Overview of Findings
4.2 Experiences of Nurses Providing Care to Patients with Duchenne Muscular Dystrophy
4.3 Challenges Faced by Nurses in Providing Care
4.4 Support Systems Utilized by Nurses
4.5 Best Practices Identified
4.6 Ethical Dilemmas Encountered
4.7 Cultural Competency Issues
4.8 Recommendations for Practice
4.9 Implications for Policy

Chapter 5: Conclusion and Summary
5.1 Summary of Findings
5.2 Conclusions
5.3 Implications for Nursing Practice
5.4 Implications for Future Research
5.5 Final Thoughts

Thesis Overview

The care of patients with Duchenne muscular dystrophy presents unique challenges for nurses, requiring a comprehensive understanding of the disease, compassionate communication skills, and a holistic approach to patient care. This thesis explores the experiences of nurses providing care to patients with Duchenne muscular dystrophy, focusing on their challenges, support systems, best practices, and ethical considerations. Through a thorough literature review and qualitative research methodology, this study aims to shed light on the often-overlooked role of nurses in caring for patients with this rare and debilitating condition. The findings of this study have the potential to inform nursing practice, policy development, and future research initiatives in the field of Duchenne muscular dystrophy care.

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