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Introduction

Muscular dystrophy is a genetic disorder characterized by progressive muscle degeneration and weakness. Patients diagnosed with muscular dystrophy require specialized care to manage their symptoms and maintain their quality of life. Nurses play a crucial role in providing care for these patients, yet there is limited research on their experiences caring for individuals with muscular dystrophy. This thesis aims to explore the experiences of nurses caring for patients with muscular dystrophy, shedding light on the challenges they face and the strategies they employ to provide optimal care.

Table of Contents

Chapter 1: Introduction
1.1 Introduction
1.2 Background of Study
1.3 Problem Statement
1.4 Objective of Study
1.5 Limitation of Study
1.6 Scope of Study
1.7 Significance of Study
1.8 Structure of the Thesis
1.9 Definition of Terms

Chapter 2: Literature Review
2.1 Overview of Muscular Dystrophy
2.2 Nursing Care for Muscular Dystrophy Patients
2.3 Experiences of Nurses Caring for Patients with Chronic Conditions
2.4 Emotional and Psychological Impact on Nurses
2.5 Communication Challenges
2.6 Best Practices in Nursing Care for Muscular Dystrophy Patients
2.7 Support Systems for Nurses
2.8 Ethical Considerations in Nursing Care
2.9 Cultural Competency in Nursing Care
2.10 Summary of Literature Review

Chapter 3: Research Methodology
3.1 Research Design
3.2 Sampling
3.3 Data Collection
3.4 Data Analysis
3.5 Ethical Considerations
3.6 Trustworthiness
3.7 Researcher’s Positionality
3.8 Limitations of the Study

Chapter 4: Discussion of Findings
4.1 Overview of Study Participants
4.2 Challenges Faced by Nurses
4.3 Coping Strategies Employed by Nurses
4.4 Impact on Quality of Care
4.5 Recommendations for Nursing Practice
4.6 Implications for Future Research

Chapter 5: Conclusion and Summary
5.1 Summary of Findings
5.2 Conclusions
5.3 Recommendations for Practice
5.4 Recommendations for Future Research

Thesis Overview

This thesis explores the experiences of nurses caring for patients with muscular dystrophy, a rare genetic disorder that presents unique challenges in nursing care. Through a comprehensive literature review, the thesis examines the current state of knowledge on nursing care for patients with muscular dystrophy and the experiences of nurses in providing this care. The research methodology section outlines the approach taken to study the experiences of nurses, including data collection and analysis methods. The discussion of findings chapter presents the challenges faced by nurses caring for patients with muscular dystrophy, the coping strategies they employ, and the impact on the quality of care provided. The conclusion and summary chapter offers a synthesis of the key findings, implications for nursing practice, and recommendations for future research in this field. This thesis contributes to the understanding of nurses’ experiences in caring for patients with muscular dystrophy and highlights the need for further research and support for nurses in this specialized area of care.

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