Exploring the experiences of nurses caring for patients with Huntingtonʼs disease – Complete Phd and Masters Thesis

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Introduction:

Huntington’s disease (HD) is a progressive neurodegenerative disorder that affects movement, cognitive function, and psychiatric symptoms. Nurses play a crucial role in caring for patients with HD, providing physical, emotional, and psychological support to both patients and their families. However, there is limited research exploring the experiences of nurses caring for patients with HD. This thesis aims to address this gap by investigating the challenges, experiences, and coping strategies of nurses working with patients with HD.

Table of Contents:

Chapter 1: Introduction
1.1 Introduction
1.2 Background of study
1.3 Problem Statement
1.4 Objective of study
1.5 Limitation of study
1.6 Scope of study
1.7 Significance of study
1.8 Structure of the Thesis
1.9 Definition of Terms

Chapter 2: Literature Review
2.1 Overview of Huntington’s disease
2.2 Nursing care for patients with HD
2.3 Challenges faced by nurses caring for patients with HD
2.4 Coping strategies of nurses caring for patients with HD
2.5 Impact of caring for patients with HD on nurses’ well-being
2.6 Training and education for nurses working with patients with HD
2.7 Best practices for caring for patients with HD
2.8 Supportive interventions for nurses caring for patients with HD
2.9 Ethical considerations in caring for patients with HD
2.10 Future directions for research in nursing care for patients with HD

Chapter 3: Research Methodology
3.1 Research design
3.2 Participants
3.3 Data collection methods
3.4 Data analysis
3.5 Ethical considerations
3.6 Validity and reliability
3.7 Research limitations
3.8 Research implications
3.9 Research contributions

Chapter 4: Discussion of Findings
4.1 Overview of study findings
4.2 Challenges faced by nurses caring for patients with HD
4.3 Coping strategies used by nurses caring for patients with HD
4.4 Impact of caring for patients with HD on nurses’ well-being
4.5 Training and education for nurses working with patients with HD
4.6 Best practices for caring for patients with HD
4.7 Supportive interventions for nurses caring for patients with HD
4.8 Ethical considerations in caring for patients with HD

Chapter 5: Conclusion
5.1 Summary of key findings
5.2 Implications for nursing practice
5.3 Recommendations for future research
5.4 Conclusion

Thesis Overview:

Exploring the experiences of nurses caring for patients with Huntington’s disease is an important study that seeks to shed light on the challenges, experiences, and coping mechanisms of nurses working with patients suffering from this debilitating condition. The thesis will begin by providing an overview of HD and the role of nurses in caring for patients with the disease. This will be followed by a comprehensive review of the literature, which will examine the challenges faced by nurses, coping strategies employed, and best practices for caring for patients with HD.

The research methodology chapter will detail the design of the study, participant selection criteria, data collection methods, and ethical considerations. The findings of the study will be presented and discussed in Chapter 4, focusing on the experiences of nurses caring for patients with HD. The thesis will conclude with a summary of key findings, implications for nursing practice, recommendations for future research, and a conclusion.

Overall, this thesis aims to contribute to the existing body of knowledge on nursing care for patients with HD and provide valuable insights for improving the quality of care provided to these patients by nurses.

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