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Introduction

Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease, is a devastating neurodegenerative disease that affects motor neurons in the brain and spinal cord. Patients with ALS experience progressive muscle weakness and atrophy, leading to difficulties with movement, speech, swallowing, and ultimately, breathing. As the disease progresses, patients require extensive care and support to maintain their quality of life.

Nurses play a crucial role in caring for patients with ALS, providing physical care, emotional support, symptom management, and coordination of care among various healthcare providers. Despite the important role that nurses play in caring for patients with ALS, there is limited research exploring their experiences in providing care for these patients.

This thesis aims to explore the experiences of nurses caring for patients with ALS, including the challenges they face, the strategies they use to provide care, and the impact of caring for patients with this devastating disease. By gaining a deeper understanding of the experiences of nurses caring for patients with ALS, we can identify ways to better support and empower these healthcare providers in delivering high-quality care to patients with ALS.

Table of Contents

Chapter 1: Introduction
1.1 Introduction
1.2 Background of Study
1.3 Problem Statement
1.4 Objective of Study
1.5 Limitation of Study
1.6 Scope of Study
1.7 Significance of Study
1.8 Structure of the Thesis
1.9 Definition of Terms

Chapter 2: Literature Review
2.1 Overview of Amyotrophic Lateral Sclerosis
2.2 The Role of Nurses in Caring for Patients with ALS
2.3 Experiences of Nurses Caring for Patients with ALS
2.4 Challenges Faced by Nurses in Caring for Patients with ALS
2.5 Strategies Used by Nurses in Caring for Patients with ALS
2.6 Impact of Caring for Patients with ALS on Nurses
2.7 Support and Training for Nurses Caring for Patients with ALS
2.8 Gaps in the Literature
2.9 Theoretical Framework
2.10 Summary

Chapter 3: Research Methodology
3.1 Research Design
3.2 Sampling Strategy
3.3 Data Collection Methods
3.4 Data Analysis Techniques
3.5 Ethical Considerations
3.6 Trustworthiness and Rigor
3.7 Limitations of the Study
3.8 Summary

Chapter 4: Discussion of Findings
4.1 Overview of Participants
4.2 Themes Identified
4.3 Comparison with Existing Literature
4.4 Implications for Nursing Practice
4.5 Recommendations for Future Research
4.6 Strengths and Limitations of the Study
4.7 Conclusion

Chapter 5: Conclusion and Summary
5.1 Summary of Findings
5.2 Contributions to Nursing Practice
5.3 Recommendations for Healthcare Policy
5.4 Implications for Future Research
5.5 Conclusion

Thesis Overview

Amyotrophic lateral sclerosis (ALS) is a devastating neurodegenerative disease that presents unique challenges for both patients and healthcare providers. Nurses, in particular, play a crucial role in caring for patients with ALS, providing physical care, emotional support, and coordination of care to ensure the best possible outcomes for these patients.

This thesis aims to explore the experiences of nurses caring for patients with ALS, shedding light on the challenges they face, the strategies they use to provide care, and the impact of caring for patients with this devastating disease. By gaining a deeper understanding of the experiences of nurses caring for patients with ALS, we can identify ways to better support and empower these healthcare providers in delivering high-quality care to patients with ALS.

Through a comprehensive literature review, research methodology, discussion of findings, and conclusion, this thesis aims to contribute to the existing body of knowledge on ALS care and provide valuable insights for nurses, healthcare providers, policymakers, and researchers working in the field of neurodegenerative diseases. The findings of this study have the potential to inform nursing practice, healthcare policy, and future research on ALS care, ultimately improving the quality of care provided to patients with ALS and enhancing the well-being of both patients and healthcare providers.

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