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Introduction:
Angelman syndrome is a rare neurogenetic disorder that affects approximately 1 in 15,000 individuals worldwide. It is characterized by severe developmental delays, intellectual disabilities, speech impairments, and unique behavioral traits such as a happy demeanor, frequent laughter, and a tendency to flap their hands. Individuals with Angelman syndrome require lifelong support and care to help them navigate the challenges they face on a daily basis. Their families also require support and resources to help them cope with the unique demands of caring for a loved one with this condition.
Social workers play a crucial role in supporting individuals with Angelman syndrome and their families by providing emotional support, advocacy, resources, and guidance to help them access the services they need. This thesis will explore the various ways in which social workers can support individuals with Angelman syndrome and their families, identify the challenges they face, and propose recommendations for improving the quality of support and care available to them.
Table of Contents:
Chapter 1 – Introduction
1.1 Introduction
1.2 Background of Study
1.3 Problem Statement
1.4 Objectives of Study
1.5 Limitations of Study
1.6 Scope of Study
1.7 Significance of Study
1.8 Structure of the Thesis
1.9 Definition of Terms
Chapter 2 – Literature Review
2.1 Overview of Angelman syndrome
2.2 The role of social workers in supporting individuals with disabilities
2.3 Challenges faced by individuals with Angelman syndrome and their families
2.4 Support services available for individuals with Angelman syndrome and their families
2.5 The impact of Angelman syndrome on family dynamics
2.6 The importance of early intervention and support for individuals with Angelman syndrome
2.7 Best practices in supporting individuals with Angelman syndrome and their families
2.8 The role of advocacy in improving services for individuals with Angelman syndrome
2.9 Ethical considerations in working with individuals with Angelman syndrome and their families
2.10 Gaps in the existing literature and areas for further research
Chapter 3 – Research Methodology
3.1 Research Design
3.2 Population and Sample
3.3 Data Collection Methods
3.4 Data Analysis Procedures
3.5 Ethical Considerations
3.6 Validity and Reliability
3.7 Limitations of the Study
3.8 Researcher’s Reflexivity
Chapter 4 – Discussion of Findings
4.1 Overview of Findings
4.2 Challenges faced by individuals with Angelman syndrome and their families
4.3 Support services accessed by individuals with Angelman syndrome and their families
4.4 Recommendations for improving support services
4.5 Implications for social work practice
4.6 Future directions for research
4.7 Summary of Findings
4.8 Comparison with existing literature
4.9 Limitations of the Study
Chapter 5 – Conclusion and Summary
5.1 Summary of Findings
5.2 Conclusions
5.3 Implications for Practice
5.4 Recommendations for Future Research
5.5 Contributions to the Field
5.6 Final Thoughts
The study aims to provide valuable insights into the role of social workers in supporting individuals with Angelman syndrome and their families, and to offer recommendations for improving the quality of support and care available to them.
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